DeID Review & Honest Broker
Evaluation service for your de-identified or limited datasets intended for sharing with external collaborators or public repositories, and confirmation on how broadly your data can be distributed.
About the service
This service helps researchers evaluate de-identified or limited datasets intended for sharing outside the study team. The review confirms how broadly data can be distributed, or recommends modifications needed to meet regulatory and professional standards.
Who can use it
Researchers affiliated with Stony Brook Medicine and/or Stony Brook University who want to share human research subject data with entities outside of their study team.
Even within a study team, access to the data is role-based. For example, statisticians may receive de-identified or limited datasets, while the clinicians and coordinators who collect and validate the data may work with the full dataset. The Honest Broker review is required before the data can be shared outside the team.
Example scenario
A clinical oncology research team completes a Phase III clinical trial. After manuscript acceptance, the publisher requests the primary analysis data for verification. The Honest Broker service reviews the dataset before release.
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