Explore & Discover

Clinical Research Data Requests

Integrated and transformed healthcare data provided securely for compliant project-specific research.

๐Ÿ› Available to: Health Sciences / Medicine๐Ÿ‘ฅ Supported by: Clinical Data & Honest Broker Services

About the service

Clinical Research Data Requests are submitted through Health System Reporting via a Data Request Form. We will work with you to understand your study data needs to provide the requested research data within compliance and IRB guidelines. Data may include health fact datasets, images, or patient lists for research study recruitment or chart review.

Request types

  • Exploratory: summary data only; may not require an approved protocol. Perfect for grant applications and feasibility explorations.
  • Hypothesis-Driven Research: requires IRB approval. Examples include analysis-ready clinical data (including imaging data), preliminary data to be transformed and analyzed, and medical record numbers for chart review.
  • Prospective Trials: requires IRB approval. Examples include datasets for statistical analysis, supplemental study data, or potential study participant contact information for HIPAA-compliant research study recruitment.
Note: The Data Request Form is accessible only from within the hospital network. Most requests require IRB approval before data can be released.
Tip: Use our TriNetX service as a tool to define your Stony Brook Medicine patient cohort by your study's eligibility criteria, then submit a Clinical Data Request to re-identify your TriNetX cohort for either chart review or research recruitment.

Example use case

A physician and his research team are participating in a consortium studying children diagnosed with hypertension at the ages 11โ€“18 in the years 2021โ€“2022. The team needs study-specific de-identified patient data on lab results and specialist referrals. With proper IRB approval, we work with the study team to provide them with the requested data.

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