Frequently asked questions

What is TriNetX?

TriNetX (TNX) is a research network combining Stony Brook's Electronic Medical Record data with the data of over 190 other health institutions. TriNetX lets researchers query real clinical data of over 230 million patients for comparative analysis, study feasibility, or as a tool for study recruitment, with free self-service access for new and experienced researchers within a secure, privacy-compliant infrastructure. Researchers can query Stony Brook data alone or combined with other provider networks.

How do I access TriNetX?

Request an account using your primary Stony Brook email, then log in at live.trinetx.com using your email as username and your UHMC or NetID credentials. If access fails after 2 business days, contact Melanie.Keister@stonybrookmedicine.edu.

How do I use TriNetX?

Log into TriNetX and click the graduation cap in the left-side menu to open the TriNetX Learn tutorials, or use the Tip Sheets in the Documentation and Learning area. Contact Melanie Keister to arrange departmental or group training.

How far back does the data go?

Stony Brook's TriNetX data goes back to January 1, 2014. Other institutions' data typically spans 7 years, with some extending back 13 years.

Can data be exported out of TriNetX?

Three networks allow dataset downloads: Research Network, Linked Network, and Stony Brook University Network. Stony Brook patient data requires an IRB-approved Exempt protocol with a Limited Dataset form. Stony Brook-only data typically arrives within 3 days; larger Research Network datasets take at least three weeks.

What data is searchable?

The TriNetX overview lists available and unavailable data types: demographics, diagnoses, medications, procedures, labs, vitals, and more. Data dictionaries are available once you have an account.

How does TriNetX determine age?

Age is calculated from the patient's date of birth. You can set a patient's Age at Event, such as the patient's age at the time of a diagnosis, using the funnel icon on specific query terms. You can also query patients' ages today using the age filter at the top of the Query Builder, which is ideal for study recruitment.

How often is data refreshed?

Stony Brook data is refreshed once a week, so data may be 1โ€“7 days old. Stony Brook's Cancer Registry data is uploaded quarterly and is typically 9 months behind the current date.

Can I use data or screenshots in grant proposals?

Yes, you can download editable reports from in-platform analytics to support proposals.

Which institutions are in the network?

TriNetX is not currently providing a full list of network institutions, for privacy reasons.

Can I publish research performed in TriNetX?

Yes. TriNetX provides publication guidelines. Note that many publications require an SBU IRB determination that the work is Not Human Subjects Research, even for non-Stony Brook datasets.

Still stuck? Check Do I need an IRB? for compliance questions, Documentation and Learning for tip sheets and templates, or email Melanie Keister.