Data DeID Review / Honest Broker Service

Review de-identified or limited datasets that researchers would like to share with external parties, such as outside collaborators or public repositories to ensure compliance with regulations and best practices.

Once we've reviewed the dataset, we can confirm the extent that the data can be shared or suggest corrections.

Service Area
Clinical Data and Honest Broker Services
Available to
Medicine Campus
Intended Use

Researchers who are affiliated with Stony Brook Medicine and/or Stony Brook University and who want to share human subject data with entities outside of their study team

Service Steps
Notes of Caution

This service is by request only. For data sharing with outside the original IRB approved study team, a data use agreement should be in place unless the intended shared data are collected directly from study participants who have consented for the data sharing.

Example Use Case

A clinical oncologist and his research team just completed a phase III clinical trial, 10% of study participants were recruited locally and the final analyses were completed and the manuscript is accepted by the publisher and the publisher requests the data used for primary analysis made available for verification.